Cory’s Journey 2008     Cory’s Journey 2009    Cory’s Journey 2010   

 

Jeff Monzingo posted a new journal entry.

1/1/2009

HAPPY NEW YEAR!!!

Cory has two days remaining in this chemo cycle. He should be released from the hospital on Saturday. He is feeling ok but is a little lethargic and sleepy. He does not handle the Ifosfamide (one of his chemo drugs) very well. He came into this treatment feeling well and strong so we are hopeful there will be no major issues. Sandy spends every night with him in the hospital and knows her way around the eighth floor at Scott & White very well. On a couple of occasions he let me spend the night and Sandy go home but he says I sleep through everything that goes on during the night, so he prefers Mom to stay.

2008 was a year with extreme joy and extreme sadness and sorrow. The joyful things that happened are that Clay graduated from Texas A&M University in May, started a job with CenterPoint Energy in Houston in May, and married Kellie in August. Kellie also graduated from Texas A&M University in May and we absolutely adore her and her family. Kellie and her family are wonderful people and we are very happy and thankful they are a part of our lives.

On the sorrow and sadness side of 2008 Dad passed away in May after a short battle with esophageal cancer. He passed away two weeks before his and Mom’s 51st wedding anniversary. He did know that Clay graduated and got a job. He was extremely proud and happy. We miss him very much. Mom is doing good and is helping us with everything. She spends a lot of time at the hospital and at home with Cory. And now we get to Cory, he was diagnosed in September with this evil monster, Desmoplastic Small Round Cell Tumor. Who had ever heard of this? Not us. We are still in shock and I think we have experienced every emotion possible, both good and bad, as we have fought this evil disease the past few months. The good news is that Cory and the rest of us remain positive and upbeat and are focusing on the positives and not the negatives and are determined to win this battle. Cory is intent on getting back to Texas A&M in the fall of 2009 and completing his education.

People continue to amaze us with their generosity and kindness as we fight this battle. God Bless you all and thank you for everything that you do.

 

Jeff Monzingo posted a new journal entry.

1/3/2009

Cory completed his 4th cycle of chemo last night. Cory was walking around the 8th floor at Scott & White hospital this morning before 7:00 am looking for the doctor. Cory eventually found the Doctor and has already been released from the hospital and is on his way home. He has been very bored in the hospital and desperately wanted out and to go home. Cory is feeling well and had very few issues with nausea this chemo cycle.

 

Jeff Monzingo posted a new journal entry.

1/6/2009

Cory is feeling good but he doesn’t have much energy since his blood counts are dropping due to the chemo. He is getting a Neupogen shot everyday for 10 days to help boost the white blood cells. He said I am getting pretty good at giving the shot. Cory will have blood work done tomorrow to see how all of his blood counts are doing. Sandy has been in bed sick since Sunday. I have her quarantined to her room and Cory quarantined to his room. Neither is allowed out of their room due to Cory’s immune system being at a dangerously low level. They are communicating with each other by cell phone.

 

 

Jeff Monzingo posted a new journal entry.

1/9/2009

Cory woke up this morning not feeling well. He has a fever and sore throat. We took Cory to Scott & White in Temple and when we got there he was weak and unable to walk into the hospital. We had to use a wheel chair to get him in. The hospital did blood work to test the blood count levels and to do cultures to test for infection. After all of the blood was taken and before the hospital had the results of the blood tests to determine if he would be admitted into the hospital Cory passed out in the wheel chair. As Cory’s cousin Jenny would say “Aunt Sandy freaked out”. If Cory was looking for attention he got it because nurses and the Doctor were scrambling around him. They got him stabilized very quickly and after the blood tests came back they have admitted Cory into the hospital. Cory is getting a one unit transfusion of platelets and a two unit transfusion of red blood cells to try and boost his blood counts. He is also getting intravenous antibiotics as a precaution against infection. It will be a couple of days before we know if Cory has an infection based on the results of the cultures that were taken. We imagine Cory will be in the hospital from two to four days based on past history.

Keep Cory and the rest of us in your prayers.

 

 

Jeff Monzingo posted a new journal entry.

1/10/2009

Cory is feeling better and his platelet count is up but his other blood counts have not started back up even after the transfusions yesterday. Cory will get another transfusion of red blood cells today to continue to try and get the blood counts to a good level.

We have talked to the blood bank here at Scott and White after many inquiries from family and friends about blood or platelet donations to Cory and how the system works. Currently the only place to give blood donations to Cory are at Scott & White in Temple and you must be the same blood type which is O+. We would have to put you on a list to be able to accept your donation of blood for Cory. The blood would be kept for 30 days and if Cory did not need it by then someone else would be able to use it. Anyone else that was not the same blood type could give in Cory’s honor but they no longer give credits for donations to be used by someone with a different blood type. Clay is O+ and is going to donate plateletes before Cory’s next chemo, we will not know when that will be until after surgery. Anyone else that is O+ and wants to give here in Temple before his next chemo let me know and I will put you on the list of acceptable donors. Everyone else please continue to give blood and platelets wherever you currently donate because there is definitely a need for donors.

Thank you for everything.

 

Jeff Monzingo posted a new journal entry.

1/11/2009

We just got the blood test results this morning and met with the Doctor. Cory’s white blood counts are up from yesterday but still extremely low, his red blood cells are up from yesterday but still low, his hemoglobin is up but still low, and his platelets dropped from yesterday and are extremely low. Cory will be getting a one unit transfusion of platelets this morning. Cory’s fever is gone but he still has a sore throat. Overall he feels slightly better than yesterday but not great. He is a little down today because he was hoping all of the blood counts would be at a level he could go home. The nurse just came in and gave him his neupogen shot and that definetly didn’t help his attitude.

Cory is sick and tired of being sick and tired.

Keep Cory and the rest of us in your prayers.

 

Jeff Monzingo posted a new journal entry.

1/12/2009

Cory’s blood counts are better and he will be released from the hospital today. He is feeling good and is very happy to be going home. We leave for New York in two weeks and surgery is still scheduled for January 29th.

 

Jeff Monzingo posted a new journal entry.

1/14/2009

Cory is feeling good and has regained his appetite. He had blood tests done today and all of his blood counts are better except for his platelets. His platelet count remains very low. The Doctor in New York is monitoring the blood tests and is confident that the blood levels will get to where they need to be for surgery. The Doctor in New York has also told us not to do the scans that are scheduled at MD Anderson next week because all of the scans will need to be done in New York before surgery.

Cory’s cousin/roommate, Jenny, is in town to spend a couple of days with him which has really lifted his spirits.

Keep Cory and the rest of us in your prayers.

 

Jeff Monzingo posted a new journal entry.

1/16/2009

We just got word that Cory’s surgery has been moved from January 29th to February 2nd. The change was not due to anything going on with Cory but was needed by the surgeon. All of Cory’s pre-op tests are still scheduled for January 27th so we will still leave for New York on January 26th.

 

 

Jeff Monzingo posted a new journal entry.

1/19/2009

Cory had blood tests this morning. His platelet count is still very low and his white blood cell count has dropped since last week’s blood test and is also low. He will get several shots to help boost the white blood cells. Surgery is scheduled for two weeks from today and his blood counts must improve for him to have surgery.

 

Jeff Monzingo posted a new journal entry.

1/23/2009

Cory’s blood counts are all up. There should be no issues with the blood counts that would hold up surgery. We are very thankful. We leave Monday morning for New York and Cory has appointments starting Tuesday at Memorial Sloan-Kettering Cancer Center. Surgery is scheduled for Monday, February 2nd and Cory’s surgeon is Dr. Michael LaQuaglia.

Please keep Cory and the rest of us in your prayers.

 

Jeff Monzingo posted a new journal entry.

1/25/2009

What a true blessing this afternoon’s gathering was. We had many dear friends and family show up to give us support as we prepare to travel to New York for Cory’s surgery. Thank you everyone for everything you are doing for us. I do not know what we would do without all of this support.
God Bless you all.

 

Jeff Monzingo posted a new journal entry.

1/26/2009

We flew out of Austin this morning at 7:05 on JetBlue. It was about a 3 hour flight to New York City. We are staying at a Courtyard Marriott that is about a mile and a half from Memorial Sloan-Kettering Cancer Center. We are on the upper east side of Manhattan for those of you familiar with the area. Sandy has been to New York but this is the first trip here for Cory and myself. It appears that New York City may be a bit larger than Pflugerville.

Cory has CT scans starting at 10:30 in the morning and we will meet with the surgeon tomorrow afternoon. We will have more details on the surgery after our appointments tomorrow.

 

Jeff Monzingo posted a new journal entry.

1/27/2009

Cory spent the day at Memorial Sloan-Kettering Cancer Center. He had scans of his chest, abdomen, and pelvis and had blood tests performed. Cory’s blood counts are all good and will not cause any issues before surgery. We met with the Doctor after all of the tests and reviewed the scans and discussed the surgery. The Doctor wanted to be sure that we understood everything about Cory’s surgery and future treatments. Cory will check into the hospital on Sunday and have surgery Monday morning. The Doctor said that surgery will not cure Cory and even with surgery survival of DSRCT is only at a 20% rate. Even though surgery will not totally cure Cory the Doctor thinks that you must do surgery if at all possible. The surgery will be very extensive and lengthy. From looking at the scans the Doctor expects to have to remove Cory’s spleen and Cory was given 3 different shots today to prepare for this outcome. Cory’s incision will be from his pelvis up to his chest. The Doctor thinks that once Cory recovers from surgery he should start chemo again immediately. We are meeting with an oncologist tomorrow to discuss future chemo treatments and different chemo drugs to possibly use. The Doctor also thinks Cory needs to go to the National Cancer Institute in Washington DC and have a bone marrow transplant. The bone marrow transplant has shown promise in fighting DSRCT.

Cory is nervous about surgery but is in decent spirits.

Keep Cory and the rest of us in your prayers.

 

Jeff Monzingo posted a new journal entry.

1/28/2009

Cory had an appointment with an oncologist this morning at MSKCC. He reviewed all of Cory’s treatments and discussed Cory’s case with us. He was very knowledgeable about DSRCT.

Bubba (Mike), Suzi, and Brian flew in from California and Mammy (Kay) flew in from Austin today. They will all be here through the surgery.

Cory received a call today from 85 team members at the Lance Armstrong Foundation, including Lance, giving Cory best wishes and telling Cory to LIVESTRONG.

Cory has 3 days off before he checks into the hospital on Sunday, so we may see some of New York as long as Cory feels well and the weather is decent.

 

 

Jeff Monzingo posted a new journal entry.

1/29/2009

Cory had a full day of seeing New York today. We started the day with Woody taking us on the bus then the subway to Grand Central Station. Some of you may be wondering who in the world is Woody. Well Sandy has this habit of making friends wherever she goes and Woody owns a restaurant next door to the hotel we are staying in. Woody wanted to make sure we could get around town using the bus and subway system so he went with us on the start of our journey. From Grand Central Station we went to the Empire State Building and Woody was confident at this time we could find our way around New York so he headed back to his restaurant. We did the Imax show at the Empire State Building and then went to the top of the Empire State Building. What an amazing sight to see New York from that high up. Then we journeyed over to Macy’s and Cory and Brian decided they wanted to see if they could go to every floor. They claim there are 11 floors and they stepped foot on every one. We left there and went and had lunch across the street from Madison Square Garden. After lunch we decided to head back on the subway and go to Battery Park. From Battery Park we took the Staten Island Ferry across to Staten Island and back. The Ferry runs in front of the Statue of Liberty. Once we were back from the Ferry ride we took the subway and then the bus back to the hotel. New York is an amazing place and we all had a wonderful day. Cory is feeling good and is in great spirits.

 

Jeff Monzingo posted a new journal entry.

1/30/2009

Cory had another full day of site seeing in New York. We took the bus and subway and went to Rockefeller Plaza, Time Square, Trump Tower, and Saint Patricks Cathedral. We allwent into Saint Patricks Cathedral and said a prayer for Cory and lit candles for Cory. Cory had a good day but was somewhat more subdued than yesterday. Cory loved going into the Toys-R-Us in Time Square. We are all tired after two full days of site seeing in New York City. Before we went on our journey this morning we had a visit from Reverend Roland Perdue and his lovely wife Jane. They spent a short time with us and had a very special prayer with us before they went back to their home in New Jersey. Their son Roland is one of my best friends from High School and they are very special people.

Thank you for all of your prayers and everything you are doing for us.

 

 

Jeff Monzingo posted a new journal entry.

1/31/2009

The weather was very cold here today so we decided to go to the American Museum of Natural History so that we would be indoors. We spent several hours at the Museum and then Cory, Brian, Sandy, and Suzi walked down to the Dakota. The Dakota is where John Lennon was shot. From there they walked into Central Park to Strawberry Fields which is a John Lennon Memorial. Cory said that he got to see everything he wanted to see in New York City the last 3 days.

Cory checks into the hospital tomorrow at 9:00 AM to begin preparations for his surgery. Surgery is scheduled for Monday morning.

Please keep Cory and the rest of us in your prayers.

 

Jeff Monzingo posted a new journal entry.

2/1/2009

Cory checked into the hospital today. He is not having a good evening. He is having to cleanse his system before surgery and the liquid solution he is drinking is not agreeing with him. Surgery is in the morning.

 

Jeff Monzingo posted a new journal entry.

2/2/2009  10:32am

Cory just went into surgery at 11:30 AM New York time. I will update as I know anything.

 

Jeff Monzingo posted a new journal entry.

2/2/2009  12:11pm

Cory is under and the incision was made at 12:40 PM NY time. We should have another update around 3:00 PM.

 

Jeff Monzingo posted a new journal entry.

2/2/2009  1:35pm

They just removed Cory’s spleen. Surgery is going ok.

 

Jeff Monzingo posted a new journal entry.

2/2/2009  4:26pm

At the 4 1/2 hour point in surgery everything is going fine. Cory is stable and the surgeon is removing tumors.

 

Jeff Monzingo posted a new journal entry.

2/2/2009  6:25pm

We received an update that the Doctor has started to close the incision. This could take up to two hours. I will update again after we meet with the Doctor tonight.

 

Jeff Monzingo posted a new journal entry.

2/2/2009  9:03pm

Cory’s surgery is over and we have met with the Doctor. The Doctor was able to remove all visible cancerous tumors. The Doctor said there were thousands of cancerous nodules throughout Cory’s abdomen and on organs and that all of these they could find have been removed. The Doctor had to remove the spleen and the appendix The Doctor did not have to remove any of the intestines. We think what we were trying to accomplish with surgery has been done. We now have to get back to chemo, bone marrow transplant and possible radiation. Cory is stable but is out of it right now. Keep Cory in your prayers.

 

Jeff Monzingo posted a new journal entry.

2/2/2009  10:58pm

We just got to see Cory. He is still slightly under anesthesia and on a breathing machine. He should be off the breathing machine in the next hour and out from under the anesthesia. This was very major surgery and Cory will be in the hospital for the next 10 to 14 days.

Thank you for your prayers.

 

Jeff Monzingo posted a new journal entry.

2/3/2009

Cory is in a room this morning. He is not in a regular room but is in one with more care but not ICU. He will be in this room for a couple of days and then they will move himto a regular room. Sandy is sick and was only able to stick her head in the doorway and then went back to the hotel to go to bed. Cory has some pain but has an epidural in to help with pain management. The Doctor plans on having Cory out of bed sometime today. I asked Cory if it felt like he was hit by a car or a train and he said definitely train.

 

Jeff Monzingo posted a new journal entry.

2/4/2009

Cory had a decent night. His pain levels are about the same. His pain levels are usually between a 5 and 7. They are going to up the dosage of pain medication to try and lowerhis pain levels. He has had a slight fever which is not uncommon after a surgery like his and his kidney output is not at the level the Doctor wants. His blood count was a little low this morning and they may give him a transfusion of red blood cells today. They are monitoring everything very close. Cory got out of bed and walked twice yesterday. Walking was a struggle but he did great. He will be required to get up and walk three times today. He is being a great patient.

Sandy is still very sick this morning and is very upset she is not at the hospital. Cory and I both assured her we are ok and she needs to stay in bed and get well. Some of our support group flew home this morning, My mom Kay and my sister-in-law Denise left this morning and they both struggled with the thought of going home and Cory still in the hospital. My brother Mike, sister-in law Suzi, their son Brian, Sandy’s sister Lori Dorsett, and brother-in-law Bob Dorsett are still in town but will be leaving in the next couple of days. It has been great having them all here giving us support.

I would like for all of you to add James Halstensgard to your prayer lists. James is 18 and a Senior in High School in Minnesota. James has the same cancer as Cory and had surgery here at MSKCC the Monday of the week before Cory’s surgery. James’s story and stage of DSRCT are very similar to Cory’s. It has been wonderful meeting James and his family and we have had much support from them and from their family and friends. James was released from the hospital yesterday and he and his Father stopped by Cory’s room to say hi and check on Cory. James has additional appointments later in the week so they are not sure yet when they will be able to go home to Minnesota. You can keep up with James at www.caringbridge.org/visit/jameshalstensgard

Please keep Cory, James and everyone fighting this awful cancer in your prayers.

 

Jeff Monzingo posted a new journal entry.

2/4/2009

Cory has had a very active day today. Cory had a chest drain tube removed today. The drain tube had been inserted in Cory’s chest because part of Cory’s diaphragm was removedduring surgery and the drain tube was needed to keep fluid from building up in Cory’s chest. The next thing removed today was Cory’s epidural. The epidural was not controlling the pain as well as the Doctor wanted so it was removed and Cory was changed over to intravenous pain medication. This has been a great change for Cory as his pain levels are down to a much more tolerable level. Cory received a blood transfusion today of two units of red blood cells because his blood count was low. To top the day off Cory just finished his third walk of the day. Cory is very tired and ready for bed. Cory has traveled all the way to New York City for surgery and his nurse tonight is a Texas A&M graduate class of 2005.

Sandy is still very sick and has a Doctor’s appointment in the morning. Lori and Bob Dorsett are going to stay in New York longer to help take care of Sandy so that I am able to spend all of my time with Cory. Sandy calls a couple of times during the day crying because she is not here at the hospital with Cory.

Keep Cory and the rest of us in your prayers.

 

Jeff Monzingo posted a new journal entry.

2/5/2009

Cory had another day full of activity. He has walked the halls 3 times today and will go on his 4th walk in about an hour. He is very close to being able to get out of bed byhimself. He is now able to get out of bed with the help of Dad only. The day after surgery it took Cory, Dad and 2 nurses to get Cory out of bed. I know he is feeling better because he sometimes gets mad and has comments about my methods of motivation and encouragement. There were no tubes or drains removed today but maybe we will have some out tomorrow.

Sandy went to the Doctor today and is feeling better. She stopped by the hospital this evening (with a mask on) just to say she loved us. She thinks she will be well enough tomorrow to spend some time at the hospital.

Thank you for all of the prayers.

 

Jeff Monzingo posted a new journal entry.

2/6/2009

Cory had a fair day today. He was moved to a regular room. He does miss all of the attention he received in the other area but a regular room is a step toward getting out of the hospital. Cory’s bandage was removed today. Cory’s incision was at least 2 feet long from his pelvis to his chest. I have never seen an incision that long. Cory walked a lot today and is getting around a little better.

We had friends from Pflugerville show up today. Terry and Larry English showed up at the hospital this afternoon and Rhonda and Tom Hawkins showed up at the hospital this evening. It was a surprise for Cory, Sandy and I. It will be nice to have them around this weekend since all of our early support group had to head back home.

Sandy is getting better and was able to spend a couple of hours (in a mask) at the hospital today.

Keep Cory and the rest of us in your prayers.

 

Jeff Monzingo posted a new journal entry.

2/7/2009

Cory had a great day today. He had his NG tube removed. The NG tube goes through his nose through the throat and into the stomach. Cory started a liquids only diet once the NGtube removed. The NG tube goes through his nose through the throat and into the stomach. Cory started a liquids only diet once the NG tube was removed. Cory has been getting all of his nourishment through an IV and has not had anything to eat or drink since last Saturday. Cory was up sitting in a chair or walking most of the day. The Doctor came by and told Cory he may be able to get out on Monday if everything continues to go good.

We had another surprise visitor from Pflugerville this morning, Wendye and Kenny Mire came to New York to see Cory. Terry and Larry English’s daughter Erin also came by today. Erin lives in New York. The Pflugerville group spent the day at the hospital with Cory, Sandy, and I. Sandy was feeling better today and spent all day at the hospital. Cory has been very happy to have all of the visitors.

Keep Cory and the rest of us in your prayers.

 

Jeff Monzingo posted a new journal entry.

2/8/2009

Cory had a very active day today. The drain tube in Cory’s abdomen was removed and half of the staples in Cory’s incision were removed. The other half of the staples will be removed later. Cory spent most of the day in the family room sitting with the Pflugerville visitors and then he would periodically walk around the 9th floor and then go back to the family room. Cory has done a very good job of doing the walking the Doctor wanted him to do. The Doctor was in this morning and was very happy with Cory’s progress. The Doctor still thinks it is possible Cory could get out of the hospital tomorrow. It is amazing to us how fast Cory is improving following surgery.

Thank you for all of your prayers.

 

Jeff Monzingo posted a new journal entry.

2/9/2009

Cory woke up last night nauseated and sick. The Doctor is giving him several medications to help with the nausea but so far it is not helping very much. The nausea has lasted all day. Cory’s digestive system has been shut down for a week due to the handling and moving of his intestines during surgery and has not started back up yet and that is causing the nausea. The Doctor is discussing putting the NG tube back in to help with this problem. The Doctor wants Cory walking as much as possible to help get his digestive system started but Cory is struggling to walk with all of the nausea. This issue is not uncommon for such a major surgery.

All of the Pflugerville visitors have gone home and it is down to Cory, Sandy, and I. Sandy is feeling much better and is almost totally well. We have been here two weeks and are ready to go home.

Keep Cory and the rest of us in your prayers.

 

Jeff Monzingo posted a new journal entry.

2/10/2009

Cory’s digestive system kicked in early this morning. He is having less nausea and feels good enough to do more walking. The rest of the staples were removed and we estimate there were a total of 60 to 70 staples closing the incision. He also is going off of the IV pain medication and taking it orally. The Doctor said we will either be out of the hospital this evening or tomorrow depending on how the change in pain medication goes.

Thanks for all of the prayers.

 

Jeff Monzingo posted a new journal entry.

2/10/2009

Cory is out of the hospital!!!

Cory was feeling good this afternoon and his body was functioning properly so the Doctor decided to get Cory out of the hospital today. We are thankful. Cory is lying in bed at the hotel and renting movies. We are giddy with happiness. A successful hospital stay will do that to you. Cory has a follow up appointment tomorrow morning with the Doctor and if everything looks good we will be released to travel home. We are flying home Friday afternoon.

Memorial Sloan-Kettering Cancer Center is a first class facility. The care Cory received was the absolute best. We have nothing but wonderful things to say about this hospital and staff.

Cory’s surgery was a great success but not the final battle he will fight. Cory’s potential next destination is the National Cancer Institute (NCI) for a bone marrow transplant. NCI is doing a type of transplant that no one else is doing and the Doctors here want us to get it done. Clay is the most likely match and has volunteered to donate his bone marrow to Cory. We will get this process going as soon as possible but have no details at this time. The Doctors here have also given us information on changing our chemo treatment and are contacting our Doctors at home about the suggested change.

Thank you all for your prayers and all of the support you are giving us.

 

Jeff Monzingo posted a new journal entry.

2/11/2009

Cory had his follow up appointment with the Doctor today. Everything looked good and Cory has been released to go home. We will fly home on Friday. Cory is feeling well but has not regained much of an appetite yet. We are going to take it easy until our flight and not do very much. Thank you everyone for all of the prayers and support we have been receiving. Please continue to pray for Cory and everyone else fighting this awful disease.

 

Jeff Monzingo posted a new journal entry.

2/12/2009

Cory has felt good today. He still does not have much of an appetite but he is trying to eat. Cory got tired of sitting in the hotel room today so we caught a cab to FAO Schwarz toy store and the Apple store. On the way to the stores I felt like I was at Six Flags riding the roller coaster but it was a New York City cab. The good news is the cab ride is cheaper than Six Flags. We leave New York City for Pflugerville tomorrow. We are excited with the results of Cory’s surgery and the anticipation of being home.

Thank you for all of your prayers.

 

Jeff Monzingo posted a new journal entry.

2/13/2009

We are home! Cory is feeling good but still does not have much of an appetite. We are very happy to be home but thankful for the surgery and our experience at Memorial Sloan-Kettering Cancer Center in New York City.

Thank you for all of your prayers.

 

Jeff Monzingo posted a new journal entry.

2/18/2009

Cory is feeling good and is regaining his appetite. He is very happy to be home. Cory will start his next cycle of chemo on Monday. The Doctor is changing the chemo drug for this cycle and Cory will do 5 days of chemo, two days off and then 5 more days of chemo. Cory is happy with the new chemo because he will be able to get the infusions daily as an outpatient. We have talked to the Doctor at the National Cancer Institute and the Doctor is sending us the testing supplies to see if Clay is a match for Cory. The bone marrow transplant program the National Cancer Institute is performing is a program that you qualify for only if your sibling is a tissue match.

Thank you for all of your support and keep Cory in your prayers.

 

Jeff Monzingo posted a new journal entry.

2/23/2009

Cory started his 5th cycle of chemo today. Cory will have chemo each weekday afternoon for the next two weeks. This treatment will all be done as an outpatient. Cory is tiredof being in the hospital and is very happy this treatment is being done as an outpatient. Cory had a very good week last week. He regained most of his appetite and is making a good recovery from surgery. Clay and Kellie (along with the their two dogs) came into town this weekend and that always lifts Cory’s spirits. Sandy’s birthday is today so we all went out to dinner Saturday night to celebrate. It was a blessing to see Cory happy and enjoying his family.

Thank you everyone for the things you do for us. Keep Cory and the rest of us in your prayers.

 

Jeff Monzingo posted a new journal entry.

2/26/2009

Cory’s chemo is going as well as can be expected this week. He is feeling tired and does not have much of an appetite but his nausea has been minimal. He is very happy that he is doing the chemo as an outpatient and not being admitted into the hospital. Cory has spent 52 days in the hospital since this started September 21st.

Sandy and I are both back working as much as we can but our priority is taking care of Cory.

Keep Cory and the rest of us in your prayers.

 

Jeff Monzingo posted a new journal entry.

3/1/2009

Cory is feeling good this weekend but does not have much energy or an appetite following a week of chemo. Cory has chemo this next week and then will have two weeks off. Cory is hopeful he feels well during the two weeks off because he wants to go hang out in College Station for a few days with his roommate/cousin Jenny.

 

Jeff Monzingo posted a new journal entry.

3/6/2009

Today is Cory’s 10th and last day of chemo for this cycle. Cory has not felt very good the last several days. He has been nauseated and his bones are hurting. He should have t wo weeks off before the next round of chemo. Cory has scans and Doctor appointments at MD Anderson on Tuesday. The scans will be the first since surgery.

The National Cancer Institute is testing Clay, Sandy, and I to see if any of us is a match for the bone marrow transplant. We currently do not have many details on the transplant.

Keep Cory and the rest of us in your prayers.

 

Jeff Monzingo posted a new journal entry.

3/11/2009

We spent a full day at MD Anderson yesterday. Cory had CT scans and several appointments with Doctors. Unfortunately Cory’s scans did not come back clear. He does have evidence of cancer in his abdomen. It is not uncommon for DSRCT to show back up but this was quick since surgery was only 6 weeks ago. We are going over our treatment options now but the only thing we know for sure is Cory will have a 5 day cycle of chemo starting March 23rd.

Keep Cory and the rest of us in your prayers.

 

Jeff Monzingo posted a new journal entry.

3/13/2009

I asked Cory last week if he could go anywhere or do anything he wanted to do, what would it be. His response was that he would like to have clam chowder in a sourdough breadbowl at Fisherman’s Wharf in San Francisco. Well guess where we are. We arrived in San Francisco this afternoon. We have a large group of us that made the trip. Cory has all of his Monzingo first cousins here. They are Jenny, Megan, Brian, Morgan, Madison, and Mason. Cory’s grandmother Mammy (Kay), brother Clay, sister-in-law Kellie, Uncle Bubba (Mike), Aunt Suzi, Aunt Denise and of course Cory’s mom and dad all made the trip. We have a full weekend of activities planned and will be home Sunday evening. Cory is a little weak and tired but is very excited about the trip. We are not worrying about cancer, work or anything else while we are here, we are all just trying to have a couple of fun filled days.

 

 

Jeff Monzingo posted a new journal entry.

3/15/2009

We are home from our trip to San Francisco. What a great city to visit. We got there Friday afternoon and our hotel was near Fisherman’s Wharf so we would be able to walk everwhere we wanted to go. The first night we had dinner at Fog Harbor Fish House on Pier 39 and the food was very good. We all went back to the hotel after dinner and did not stay out late because we had a full day of activities planned for Saturday. We started Saturday morning with a tour of San Francisco in an open top double decker bus. The weather was cool but it was not raining so we sat in the open top section of the bus. The tour was a great way to see much of San Francisco that we otherwise would not have been able to see in the short time we were in San Francisco. After the bus tour we proceeded to Boudin Bakery and ate clam chowder in a sour dough bread bowl. That is where the picture of Cory was taken eating the clam chowder. Next we visited the wax museum at Fisherman’s Wharf. After the wax museum we went on a tour of Alcatraz. Most of us had never been to Alcatraz so we were all very happy to be going on the tour. When we got back from Alcatraz we went to Ghirardelli and had sundaes. The sundaes at Ghirardelli’s were wonderful. Saturday evening we ate dinner at Bubba Gump Shrimp Co. on Pier 39 and the food and atmosphere were great. Bubba Gump Shrimp Co. is one of Cory’s favorite restaurants. We were all totally exhausted after everything we did Saturday but the girls still had enough energy to shop on Pier 39 before we headed back to the hotel. We have had so many people do kind things for us the last few months and this trip was no different. The Executive Director of San Francisco Beautiful, Leigh Ann Baughman, had our meals at Fog Harbor Fish House and Bubba Gump Shrimp Co. provided complimentary to all of us. The tour of the wax museum, the tour of Alcatraz and our sundaes at Ghirardelli were also complimentary. Also, Ghirardelli gave Cory a gift card to spend in their store. It was totally unbelievable the kindness we received from these establishments and Leigh Ann. Thank you very much. We would also like to thank everyone here at home that is doing amazing things to support us during our time of need. Our trip was wonderful and was a much need diversion for all of us. Cory had a great time and was very happy to be doing all of these wonderful things with so many members of his family.

 

Jeff Monzingo posted a new journal entry.

3/21/2009

Cory has felt very good all week. He has been getting out of the house and running around doing things. He left Saturday morning and is going to Sugar Land to spend the night with his brother and sister-in-law. It is good to see him feeling well and living life. Cory starts his next cycle of chemo on Monday and it will last 5 days. He has a CT scan and PET scan scheduled at MD Anderson on April 8th and we will discuss future treatments with the Doctors at that time.

Keep Cory and the rest of us in your prayers.

 

Jeff Monzingo posted a new journal entry.

3/27/2009

Clay, Sandy, and I were all tested to see if we were a match with Cory for a bone marrow/stem cell transplant. We received a call today from the National Cancer Institute that none of us were a match. Currently the transplant is not being done unless it is a related person (sibling or parent) that is a match. The Doctor that called indicated that the program may be expanded in the next few months to include non-related donors. We will pursue this transplant in the future when non-related donors are considered.

Cory completed a five day cycle of chemo today. He is tired but overall feels well. He has concentrated this week on staying hydrated and eating and he has done a good job on both.

We have scans scheduled at MD Anderson Cancer Center on April 8th and are considering our options for another surgery. We sent the last scans taken that show the new cancer to Memorial Sloan-Kettering Cancer Center for their input on what our next step in treatment should be.

Thanks for everything and keep Cory in your prayers.

 

Jeff Monzingo posted a new journal entry.

4/3/2009

Cory has been feeling well this week. He has not had any treatments this week and the only visit to the Doctor was to get a shot to help boost his white blood cell count.  He is eating well and appears to be gaining some of his weight back that he has lost throughout this ordeal. We made a trip to College Station last weekend so Cory could help celebrate his cousin Megan’s birthday. Cory was able spend some time with her and some of their friends. He misses all of his college friends and the college life very much. He is hopeful he will be well enough to start back to school in the fall.

 

Cory has appointments at MD Anderson on Monday, Wednesday, and Thursday next week. He will have several tests and scans performed which will help us and the Doctors determine what the next step in his treatment will be.

 

Keep Cory in your prayers.

 

Jeff Monzingo posted a new journal entry.

4/9/2009

Cory had very good report at MD Anderson. His scans look better and it appears the chemo treatment he is undergoing is having positive results.  The Doctors want Cory to continue on the same chemo treatment doing a 5 day cycle of treatments starting every 21 days then come back to MD Anderson in July for more tests and scans and reevaluate his treatment at that time. The Doctors and all of us are very happy.

Keep Cory and the rest of us in your prayers.

 

 

Jeff Monzingo posted a new journal entry.

4/16/2009

Cory is having chemo everyday this week. He is feeling good and is not having many issues. His cousin from California is spending spring break with Cory this week and is keeping Cory entertained.  Cory’s appetite is getting better and he appears to be gaining some weight. He is still down about 65 pounds from when this all started. The chemo drugs that Cory is now getting have allowed his hair to grow back and he is also looking healthier.

Keep Cory in your prayers.

4_16_2009

 

Jeff Monzingo posted a new journal entry.

4/21/2009

Cory had chemo for 5 days last week. Everything went very well and he encountered no problems or issues related to the chemo. He is feeling a little tired this week but that is because his blood counts are down due to the chemo. His appetite continues to improve and he appears to be gaining some of the weight back that he had lost. The chemo drugs he is getting now have allowed his hair to grow back and he is looking more like he did before his cancer was discovered. He has a much healthier look now than he had a few weeks ago. Cory will start chemo again on May 4th. Cory, Sandy, and I are going to spend this upcoming weekend in College Station going to the baseball games between A&M and Oklahoma State. Cory’s first cousin Michael Dabbs plays for Oklahoma State.

 

Keep Cory in your prayers.

 

 

Jeff Monzingo posted a new journal entry.

4/28/2009

Cory has been feeling wonderful the last week. He made the trip to College Station and was able to spend time with his friends and spent two nights in his own apartment. Oklahoma State was in town for baseball against Texas A&M and we attended all 3 games. It was great fun watching Cory’s cousin, Michael Dabbs, play for Oklahoma State and visit with all of the family in town for the game. We had a wonderful time.

 

Cory has an appointment with his Oncologist at Scott & White this week and starts chemo at Scott & White on Monday, May 4th. This chemo cycle will be for 5 days and will be the same chemo drugs he has been getting for the last 3 cycles. Cory then has appointments with his Oncologist and the Surgeon at MD Anderson on May 14th. He will also have CT and PET scans performed at that time. We were originally scheduled for the MD Anderson appointments in July but the Doctors at MD Anderson have decided that Cory needs his scans on a more frequent schedule due to the aggressive nature of Cory’s cancer, Desmoplastic Small Round Cell Tumor.

 

Keep Cory in your prayers as he continues his battle.

 

 

Jeff Monzingo posted a new journal entry.

5/9/2009

Cory completed his 8th chemo cycle on Friday. This chemo cycle was 5 days and he was treated with the chemo drugs Irinotecan and Temodar. He is tired but overall feels well. Cory has appointments at MD Anderson on Thursday. He will have CT and Pet scans, x-rays, blood work, and will meet with his Oncologist and his Surgical Oncologist. Cory will start his appointments at MD Anderson on Thursday at 8:00 AM and will be finished around 6:00 PM. It will be a long stressful and anxious day for Cory.

 

Cory remains happy and upbeat. Cory’s great attitude is a tremendous blessing for us all.

 

Please keep Cory and the rest of us in your prayers.

 

 

Jeff Monzingo posted a new journal entry.

5/15/2009

Cory completed a long day at MD Anderson yesterday with very encouraging news. His scans are improved and the Doctors are very happy with his progress. The scans still show a couple of areas around the liver that are possibly cancerous. In spite of the improvement it is the belief of our oncologist and surgical oncologist at MD Anderson that Cory should undergo another surgery to make sure all evidence of cancer is removed and then continuous hyperthermic peritoneal perfusion be performed on Cory. Continuous hyperthermic peritoneal perfusion is a heated chemo drug that would be pumped into Cory’s peritoneal cavity following surgery and the heated chemo drug would wash his peritoneal cavity and all of his organs in the cavity. MD Anderson is the only Cancer Center that is performing this procedure on DSRCT (Cory’s cancer) patients but it is their belief from statistical data they have derived from clinical trials they are currently completing that this procedure is necessary to postpone and possibly eliminate the re-occurrence of this cancer. Cory has decided to have this surgery and procedure performed this summer. No date has been set yet but we think it will be in July. This decision has been much tougher to make than the first surgery but as we watch patients with DSRCT continue to succumb to this awful disease we think the aggressive approach to treatment is the best course to take.

 

Cory has also decided that he is well enough now to go back to Texas A&M. Cory met with an advisor on Wednesday and registered for 12 hours for the fall semester. We are all excited about Cory being well enough to go back to school but we understand how tough this will be on him getting an education and fighting cancer at the same time.

 

Thank you for all of your support and continue to pray for Cory and all of the decisions that are made in this battle.

 

 

Jeff Monzingo posted a new journal entry.

5/22/2009

Cory has felt wonderful this week.  He has been very active and even got out and hit a few golf balls. Cory is not a golfer so it was interesting watching him trying to hit the ball.

 

Cory will start his 9th cycle of chemo on Tuesday and it will last for 5 days. This will be Cory’s last chemo cycle until after surgery. The surgery has been set for July 9th at MD Anderson Cancer Center in Houston. The surgery will be approximately 8 hours long with hyperthermic peritoneal perfusion performed after all signs of cancer have been surgically removed. The Doctors expect Cory to be in the hospital about 10 days with several of those days in intensive care. Cory will have the full month of June with no procedures or chemo performed. This will give him time to gain some strength before surgery.

 

Keep Cory in your prayers.

 

 

Jeff Monzingo posted a new journal entry.

5/30/2009

Cory completed his current cycle of chemo today. He is feeling well but is very tired. Cory only had one day of nausea issues during this chemo cycle.

Cory will not have any chemo or other treatments during June, this will give him time to build up his strenght for surgery at MD Anderson on July 9th.

Keep Cory in your prayers.

 

 

Jeff Monzingo posted a new journal entry.

6/7/2009

Cory has felt well all week. He had some pain in his bones earlier in the week following his Neulasta shot. The Neulasta shot helps promote the production of white blood cells following chemo. Cory does not have any treatments scheduled for the month of June and is scheduled to have surgery at MD Anderson Cancer Center in Houston on July 9th.

 

Cory is spending this week in Sugar Land with Clay and Kellie. Clay is having his 23rd birthday on Wednesday. Cory is very happy and excited to be spending a week with his brother and sister-in-law.

 

Keep Cory in your prayers.

6_7_2009

 

Jeff Monzingo posted a new journal entry.

6/15/2009

Cory is back in Pflugerville after spending a week with his brother and sister-in-law in Sugar Land. Cory had a wonderful time and felt great. Cory is eating very well and hasgained some weight back. He is getting stronger and building his body up for his next surgery on July 9th.

 

We leave Saturday for a week at Lake Tahoe. Cory will be able to get away and relax for several days and keep his mind off of his upcoming surgery. We are meeting Mike (my brother), Suzi, and Brian at Lake Tahoe.  Mammy (my Mom) has been traveling the last few weeks and will meet us at Lake Tahoe along with her cousin Annette and Annette’s husband Bruce. Cory has really missed his Mammy not being in Pflugerville and he is still wondering who gave her permission to leave town.

 

With Cory feeling well and looking well we feel almost normal again. We are so happy to see him feeling well and not suffering.

 

Thank you for all of your prayers.

 

 

Jeff Monzingo posted a new journal entry.

6/21/2009

We are in Lake Tahoe and will be here for a week. The high temperature in Lake Tahoe today is 62 and the high back home today is 101. We are happy to be in this cool weather.

Cory is feeling wonderful and is hanging out with his cousin Brian. We had 11 of us for dinner last night and are expecting more friends to come up tomorrow. We don’t have many activities planned for the week, mainly rest and relaxation. My brother and I will spend at least one day trout fishing up in the mountains.

 

Happy Father’s Day to all of the Fathers out there.

 

Keep Cory in your prayers.

 

Jeff

 

 

Jeff Monzingo posted a new journal entry.

6/29/2009

We are back in Texas after a week at Lake Tahoe. We had a wonderful time and it was great getting away for awhile. We are all dragging a little trying to get back on Texas time and get re-acclimated to the Texas heat.

 

Cory does not have any treatments or procedures this week.

 

Cory will have a PET scan, CT scan, x-rays, blood work, and meet with the Doctors at MD Anderson on Tuesday, July 7th. Cory will then have surgery on Thursday July 9th. Cory’s surgery will entail removal of all signs of cancer from his abdomen and then having hyperthermic peritoneal perfusion. The total procedure is projected to last about 8 hours. We expect to be in Houston about two weeks with Cory spending 10 of those days in the hospital.

 

Cory is feeling well, looks healthy, and is in good spirits. Cory has decided to have this surgery to do all he can to beat this cancer but does not want to discuss it with anyone before we head to Houston. That is how Cory coped with the first surgery in New York City and that seemed to work well for him. It is hard to imagine someone having to face such tough life and death decisions at 19 years of age.

 

Please keep Cory in your prayers.

 

 

Jeff Monzingo posted a new journal entry.

7/6/2009

Cory, Sandy, and I leave for Houston today. Cory has scans, tests and Doctors appointments starting tomorrow morning at MD Anderson Cancer Center. Cory’s surgery is scheduled for Thursday. We expect to be in Houston about two weeks.

Cory’s surgeon at MD Anderson is Dr. Andrea Hayes-Jordan. Dr. Hayes-Jordan is very good friends with Dr. LaQuaglia, Cory’s surgeon at Memorial Sloan Kettering Cancer Center (MSKCC) in New York City. When we had our final appointment with Dr. LaQuaglia he recommended we meet with Dr. Hayes-Jordan and discuss a second surgery and having hyperthermic peritoneal perfusion performed. Dr. LaQuaglia and MSKCC do not perform the hyperthermic peritoneal perfusion. After meeting with Dr. Hayes-Jordan, Cory decided that having the surgery and hyperthermic peritoneal perfusion gave him his best chance at surviving Desmoplastic Small Round Cell Tumor.

Cory remains in good spirits but is beginning to get nervous about his upcoming procedures.

Please keep Cory in your prayers.

 

Jeff Monzingo posted a new journal entry.

7/8/2009

Cory has had two long days at MD Anderson. Many scans and tests were performed. Surgery is scheduled for tomorrow morning at 7:30 am. Overall the scans showed some improvementbut there was a new spot on the liver. The surgeon was confident that she would be able to remove what was on the liver.

Cory is feeling good and is in great spirits. Cory has 23 family members and friends that have come into Houston for the surgery and more are coming in tomorrow.

Keep Cory in your prayers.

 

Jeff Monzingo posted a new journal entry.

7/9/2009 10:25am

Cory went into the operating room at 7:00. All of the operation preparation was completed and actual surgery was started at 8:25. We got our latest update at 10:15 and Cory has lysis of adhesion slowing down the surgery. This sounds like a scar tissue situation per the Internet definitions. It is taking a very long time to make the incision because of this. We were told before the surgery started that this could be an issue because of the prior surgery. It is not a big deal it just takes longer to get the incision completed. His vital signs are strong and he is doing well. We should have our next update around 12:00.

 

Jeff Monzingo posted a new journal entry.

7/9/2009 12:00pm

Incision completed and working on the liver. A liver surgeon has gone in to assist. Also working on the diaphragm.

Jeff Monzingo posted a new journal entry.

7/9/2009 1:22pm

Dr. Hayes-Jordan, Cory’s surgeon, just came out and met with us. She said she has removed 82 cancerous nodules so far. She has a small area remaining to clean out. Currently the liver surgeon is working on Cory’s liver. Cory has 2 nickel size lesions on his liver. These will be removed and a biopsy of the lesions performed.

 

Jeff Monzingo posted a new journal entry.

7/9/2009 3:58pm

They have completed the work on Cory’s liver and are now continuing to remove any cancerous nodules they can find.

 

Jeff Monzingo posted a new journal entry.

7/9/2009 5:46pm

They have started the hyperthermic peritoneal perfusion on Cory. Last count we had of cancerous nodules removed was 116 but we will get the final count later. Cory is doing good.

 

Jeff Monzingo posted a new journal entry.

7/9/2009 7:24pm

Done! Dr. Hayes-Jordan just came out and was very happy. All cancer was removed. 116 cancerous nodules plus what was taken off the liver. Cory handled everything very good andwill be in ICU shortly.

Thank you for all of the prayers.

 

Jeff Monzingo posted a new journal entry.

7/10/2009

Cory is doing very well. Cory was moved to ICU last night about 9:00 pm. He was kept sedated until this morning. The medication has been reduced and Cory is starting to become more alert. He was taken off the breathing ventilator at about 11:00 this morning and is breathing on his own. He is a little disoriented but should be much better by the evening.

 

Thank you for all of the prayers. We are all much relieved with the outcome of Cory’s surgery.

 

Jeff Monzingo posted a new journal entry.

7/11/2009

Cory is doing OK. He has some pain and did not sleep well last night. The nurses got him up and out of bed this afternoon and he was able to sit in a chair for about an hour. The tube in his nose was removed today and he is very happy about that. The Doctor is hopeful that Cory will be able to get out of ICU and into a regular room tomorrow.

 

Keep Cory in your prayers.

 

Jeff Monzingo posted a new journal entry.

7/12/2009

Cory is feeling a little better today. The Doctors are happy with how Cory is progressing. The first plan today was to leave him in ICU but the Doctors decided he would get more rest in a regular room and have moved him to the pediatric floor. The nice thing about the pediatric floor at MD Anderson is that all of the rooms are private. At Memorial Sloan-Kettering in New York for Cory’s surgery in February the rooms were semi-private. Cory is much happier having his own room.

Keep Cory in your prayers.

 

Jeff Monzingo posted a new journal entry.

7/13/2009

Cory is having a good day. The drain tube was removed from his abdomen. He has been out of bed walking more and sitting in a chair. He has felt well enough to watch television occasionally today but he has not wanted his cell phone, iPod, or computer. We will know he is feeling well when he is using those things. The Doctors are all pleased with his progress.
Keep Cory in your prayers.

 

Jeff Monzingo posted a new journal entry.

7/14/2009

Cory had a good day today. He walked twice as much today as he did yesterday. Walking is very important in his rehab to get all of his internal system working again. His pain levels have been ok and he still has his epidural in to help with the pain but that should come out in the next two days. Cory’s recovery is going as expected.

Keep Cory in your prayers.

 

Jeff Monzingo posted a new journal entry.

7/15/2009

Cory did not have a very good day today. He had a minor reaction to one of the drugs he is getting and he started shaking and sweating. He was given Benadryl and it stopped the reaction but it knocked him out for most of the day. He is feeling better but is very tired. We are hopeful for a better day tomorrow.

 

Keep Cory in your prayers.

 

Jeff Monzingo posted a new journal entry.

7/16/2009

Cory is feeling better. Surgery was one week ago today. We are not sure how many more days he will be in the hospital. It all depends on when his digestive system starts working again. His epidural was removed this morning. He is back to walking and his pace is much better today. He is having some issues with nausea but that has been better the last couple of hours.

Keep Cory in your prayers.

 

Jeff Monzingo posted a new journal entry.

7/17/2009

Cory is having a good day today. He is feeling better and doing a lot of walking. The digestive system has not started working yet and it may be a several more days before it starts back up. We are hopeful he will be out of the hospital early next week.
Keep Cory in your prayers.

 

Jeff Monzingo posted a new journal entry.

7/18/2009

Cory is feeling good but has not had much change in his digestive system from yesterday. Cory got his iPod out today for the first time since surgery so that means he is feeling better. I think the three of us are tired of sitting around looking at each other.

Keep Cory in your prayers.

 

Jeff Monzingo posted a new journal entry.

7/19/2009

Cory is feeling good today. Cory is very close to having everything working properly. His stomach drain has been clamped off and the amount of nutrition going through his feeding tube has been increased. Hopefully he will be able to tolerate the changes. If this goes OK the next step is eating ice chips and drinking water.

Keep Cory in your prayers.

 

Jeff Monzingo posted a new journal entry.

7/20/2009

Cory’s diet was changed to clear liquids this morning. Cory was glad to drink some water after 12 days without being able to drink any water. Cory is feeling OK but has had some nausea with the change in diet. Once Cory gets used to clear liquids he will progress to soft foods.

Keep Cory in your prayers.

 

Jeff Monzingo posted a new journal entry.

7/21/2009

Cory has been experiencing nausea off and on since yesterday. His digestive system is not ready to start working just yet. It is a waiting game for everything to start working again. Whenever the digestive system starts working he can go home.

Keep Cory in your prayers.

 

Jeff Monzingo posted a new journal entry.

7/22/2009

Cory is still not feeling very good. He is fighting nausea and the stomach is not in working order yet. The Doctors have changed some medications trying to get everything working but it takes time.

Keep Cory in your prayers.

 

Jeff Monzingo posted a new journal entry.

7/24/2009

Cory is feeling better but remains in the hospital. Surgery was two weeks ago yesterday. Cory’s stomach drain tube is clamped shut and he is drinking clear liquids to see if his stomach is ready to start functioning. Hopefully the stomach will start functioning and Cory will get out of the hospital. Cory, mom, and dad are all ready to go home.

 

We received word last week that the two nickel size lesions on the liver were DSRCT cancer. The surgeon was able to remove them but did have to remove a portion of the liver. The lesions were both located in the 6th segment of the liver.

 

Keep Cory in your prayers.

 

Jeff Monzingo posted a new journal entry.

7/26/2009

Cory has felt decent all weekend. He is drinking clear liquids trying to get his stomach working again. Cory has to open his stomach drain tube after each cup of water because the water will not go down yet and he gets nauseated when the stomach is full. He is being tube fed but that is not causing any issues because the tube feeding is directly into the intestines and skips the stomach. The intestines are working properly.

 

Keep Cory in your prayers.

 

Jeff Monzingo posted a new journal entry.

7/27/2009

Cory is getting out of the hospital in the next couple of hours. We will spend the night in Houston tonight and will head to Pflugerville in the morning. Cory is very happy.

 

Keep Cory in your prayers.

 

Jeff Monzingo posted a new journal entry.

7/28/2009

We are home and very happy to be here.  We were in Houston 3 weeks and Cory was in MD Anderson for 19 days. Cory’s recovery has been fine except his stomach is taking some time to start functioning properly again. Cory is being tube fed at home and those feedings will be reduced as he is able to eat food normally. We will go back to MD Anderson next week to meet with Cory’s doctors so they can check on the progress of his recovery and discuss what Cory’s next treatment will be.

 

Thank you for all of the prayers and support.

 

Jeff Monzingo posted a new journal entry.

8/1/2009

Cory’s stomach is functioning and he is feeling well.

 

Cory had not felt well since he got home from the hospital on Tuesday. He was not able to eat or drink anything  without having to open his stomach drain. Everything started changing last night when Cory became hungry and ate a small bowl of soup with no issues and he did not have to open his stomach drain. Cory has been eating small amounts of food today with no problems except he gets full on just several bites. It will be a slow process for his stomach to get back to normal but it will over time. Cory is being tube fed approximately 12 hours each day until he can eat normally.
Cory felt so good today that we went to College Station and signed a lease on an apartment for the fall semester at Texas A&M. It did us all good to see him so happy and excited about going back to school.

 

Cory has appointments at MD Anderson on Monday with both his Surgeon and his Oncologist. This will be a post surgery checkup and discussions on what Cory’s next treatment should be.

 

What a Blessing the last few hours have been. Keep Cory in your prayers.

 

Jeff

 

Jeff Monzingo posted a new journal entry.

8/3/2009

Cory is eating and feeling better. We are heading to Houston this morning for afternoon appointments at MD Anderson.

 

Please keep James Halstensgard in your prayers today. James is having surgery this morning at Memorial Sloan-Kettering Cancer Center in New York City. We met James and his family in New York City when Cory had his first surgery.  James is from Minnesota and is also fighting DSRCT. You can check on James at

www.caringbridge.org/visit/jameshalstensgard

 

Jeff Monzingo posted a new journal entry.

8/4/2009

We are back from Houston. The Surgeon and Oncologist were both pleased with the progress of Cory’s recovery following surgery.  Cory’s Oncologist wanted Cory to start his new chemo regimen as soon as possible so we stayed overnight in Houston and Cory had chemo this morning at MD Anderson. Cory’s new chemo drugs are cyclophosphamide and vinorelbine. Cory has not had either of these drugs before. Cyclophosphamide is in a pill form and Cory will take it every day and vinorelbine is an infusion he will have once a week at Scott & White hospital. Cory’s Oncologist is confident this new chemo regimen will work well with Cory’s plans for school in the fall.

 

Please keep Cory in your prayers.

 

Jeff Monzingo posted a new journal entry.

8/9/2009

Cory has felt fairly well all week. His eating has improved and he has been getting out of the house more. Cory had to go to the emergency room yesterday because his feeding  tube had pulled out about 6 inches. The tube has some slack in it so pulling out a little does not mean that it has pulled out of the jejunum. The ER pushed the tube back into Cory’s abdomen, shot dye into the tube and then x-rayed to make sure the tube was still in the jejunum. The x-ray came back showing that the tube was still located in the proper place.

 

Cory has appointments at MD Anderson in Houston on Monday and chemo at Scott & White in Temple on Tuesday.  Friday Cory will move into his new apartment in College Station. He is very excited about going back to Texas A&M. Cory is taking 12 hours and will not have class on Friday. We have set up Cory’s chemo schedule so once school starts he will get his chemo infusion every Friday.
Thank you for all of your continued support and prayers.

 

Jeff Monzingo posted a new journal entry.

8/16/2009

Cory has been feeling well all week. His eating is improving daily. Cory had appointments at MD Anderson this week and all of his Doctors are very pleased with how he is recovering from the surgery. Cory also had chemo at Scott & White in Temple this week and so far is handling the chemo very well. Cory is using the feeding tube approximately 12 hours every night and those calories plus the calories from what he is able to eat are getting Cory above the minimum calorie intake the Doctors want him to have. The plans are for the feeding tube and the stomach tube to be removed on August 26th. Cory has appointments scheduled for MD Anderson on August 26th and 27th.

 

We have spent the weekend in College Station and have moved Cory into his new apartment. Cory will not move back to College Station for another week or so but we had to move now because the lease was up on the old apartment. Cory is very happy to be coming back to school. Clay and Kellie have also been in College Station this weekend and are celebrating their first anniversary today. It is hard to believe it has already been a year since their wedding. As many of you will remember Cory was his brother’s best man and was not feeling well during all of the wedding festivities. Cory started going to Doctors after the wedding to try and figure out why he was not feeling well but it was not until September that his cancer was diagnosed. It is amazing how things can change in your life so quickly and how your old worries and priorities are no longer near as worrisome or as important as they once were. Every day is a blessing and should be lived to the fullest and cherished as if it is your last.

 

Keep Cory in your prayers.

 

Jeff Monzingo posted a new journal entry.

8/21/2009

Cory has been feeling great all week. His eating is improving and he is gaining back some the weight he lost following surgery. Cory had chemo on Tuesday at Scott & White in Temple and has appointments at MD Anderson in Houston on Wednesday and Thursday next week. Cory is still using the feeding tube 12 hours a day but is hopeful to have the feeding tube removed next week at MD Anderson. Cory moved his things into his new apartment in College Station last weekend and will start classes at Texas A&M on the 31st. Cory is not living in College Station yet but will be after his appointments at MD Anderson next week. Cory is excited and happy about going back to school. We are all somewhat apprehensive about Cory doing chemo and going back to school but Cory said “you can’t do it if you don’t try”.

Keep Cory in your prayers.

 

Jeff Monzingo posted a new journal entry.

8/24/2009

Cory will be 20 years old on Thursday.
We will be in Houston on Wednesday and Thursday at MD Anderson going to appointments. Maybe his birthday gift will be getting his feeding tube and stomach drain tube removed. I know that would make him very happy. If all goes as planned we will drop him off at his apartment in College Station on Thursday night and he will be living the college life again. Classes begin at Texas A&M on Monday, August 31st.

Thank you for all of your support and keep Cory in your prayers.

 

Jeff Monzingo posted a new journal entry.

8/27/2009

HAPPY BIRTHDAY CORY!!!

 

Cory’s appointments at MD Anderson on Wednesday went very well. Cory met with his Oncologist and it was determined that Cory will continue his current chemo. Cory is taking Cyclophosphamide daily in a pill and he gets Vinorelbine once a week. Cory then had his feeding tube and stomach drain tube removed. Cory is very happy to have these tubes out. Cory had appointments scheduled for Thursday but he was able to cancel one and the other will be done in October. We then took Cory back to College Station and dropped him off at his apartment. This was his first night alone since this ordeal started last year. Sandy handled us leaving him at school OK but she did shed a few tears. “It’s what moms do” is what one of the nurses told Cory as Sandy was crying when they were taking him to the operating room on his last surgery and I think Sandy crying after leaving him at school after all he has been through qualifies as “It’s what moms do”.

Please keep Cory in your Prayers.

 

Jeff Monzingo posted a new journal entry.

9/1/2009

Cory started back to school at Texas A&M on Monday. I know he is back in school because he called me and said he needed $500 for his books. Ouch. We have not seen Cory since we all went to MD Anderson last week. This is the first time we have been away from Cory since his cancer was discovered last September. We will be staying with Cory this weekend so that we can attend the Texas A&M football game on Saturday. We are hopeful for a better season this year. Cory has decided that he will not attend the game Saturday due to the heat. Cory is worried that he will overheat and get very tired due to the chemo he is getting and because his surgery was not that long ago. He is hopeful to get his strength back and be able to attend some games when the weather cools a little.

 

It is a wonderful blessing to see Cory so happy and back in school. Thank you for all of your continued prayers and support.

 

Jeff Monzingo posted a new journal entry.

9/10/2009

Cory is doing great. He is very happy to be back in school at Texas A&M and being around all of his friends. Cory continues to take one of his chemo drugs orally each day and goes into the Scott & White clinic in College Station each Friday for another one of his chemo drugs. We are totally amazed and inspired by Cory that after two major abdominal surgeries since February he is back in school and living his life again.

 

The information below is about the LIVESTRONG challenge. Sandy is signed up to do the 20 mile bike ride and the 5k run and would love for some people to join her.
Join us for the LIVESTRONG Challenge Austin October 25, 2009 and pick a fight with cancer.

 

The LIVESTRONG Challenge is the Lance Armstrong Foundation’s signature fundraising event inspired by the hope, courage and determination that exist in all of us.  We take to the streets on bikes and on our feet, uniting individuals to stand together to fight cancer.

 

For the 2009 LIVESTRONG Challenge, BTHOC for Cory is looking to recruit 25 team members and raise $1,500 to support cancer prevention, provide access to screening and care, fund research, and enhance the quality of life for cancer survivors everywhere.  Whether you walk, run, or ride, your participation is one more powerful weapon in the crucial fight against cancer.

 

Ready to join BTHOC for Cory? Register today by following these easy steps:

 

  1. Visitwww.livestrongchallenge.org
  2. Click on Austin
  3. Click on Register for Austin ($50 fee)
  4. Agree to the waiver ($250 fundraising minimum required for riders to participate)
  5. Choose “Join a Team” and select BTHOC for Cory from the drop down list.

 

Remember to recruit your friends and family to join you on BTHOC for Cory.  We need their help to reach our fundraising goal.
Through the dollars and awareness that we raise, we will inspire and empower individuals, and we will make life better for the more than 12 million Americans living with cancer. We look forward to having you unite with us as a partner in our fight.
Join the Fight. Take the Challenge.

 

LIVESTRONG

 

Jeff Monzingo posted a new journal entry.

9/21/2009

One year ago today we took Cory to the emergency room because he was not feeling well and had not been feeling well in several weeks. The ER doctor ran several tests and everything checked out OK but said “why don’t we do a CT scan of Cory’s abdomen and see if anything unusual is going on in the abdomen”. After the CT scan was completed we will never forget the shocked look on the Doctor’s face as she told Cory, Sandy, and I that Cory had large tumors throughout his abdomen. That moment changed Cory’s life forever. Cory went from a student with not many worries to a young man fighting a rare and deadly cancer. Cory has had an incredibly arduous battle with Desmoplastic Small Round Cell Tumor since that day. Cory has endured much suffering and pain during this past year but entwined with all of the suffering and pain has been bravery and a will to live that is amazing to all of us. Cory has had two major abdominal surgeries, one at Memorial Sloan-Kettering Cancer Center in New York City and one at MD Anderson Cancer Center in Houston. Cory has also had numerous chemo treatments and the chemo treatments continue today. We do not know what the future holds for Cory but he will continue to fight this cancer and do everything necessary to win this battle. We have learned many things during this past year and the most important is that each day is a blessing and should be lived to its fullest. We have also learned that things that seemed important before Cory’s cancer are not as important as we thought. We try not to let small problems or issues take up our time or worry us. Our faith in people has been confirmed because we have had so many wonderful things done for us that we are truly amazed at the generosity and kindness of people. Thank you everyone and God Bless you all.

 

Cory is feeling well and is back in school at Texas A&M. Cory is scheduled for a PET scan and CT scans of his chest, abdomen, and pelvis at MD Anderson in October.

 

Keep Cory in your prayers.

 

 

Jeff Monzingo posted a new journal entry.

9/28/2009

Sandy and I spent the weekend in College Station with Cory. He likes his Mother coming into town and cleaning his apartment and doing his laundry. Who wouldn’t? Cory was busy most of the weekend writing and studying. Cory has a test today and two papers due this week. He said he had forgotten how much work it was to be in school. Cory did not attend the Texas A&M football game this weekend because his blood counts have been low due to his chemo and he did not want to get around a large crowd. Cory has been feeling fairly well and has only missed one day of school due to his chemo making him feel lousy. Cory continues to try to live life like most other students in spite of his cancer battle. Keep Cory in your prayers.

 

Jeff Monzingo posted a new journal entry.

10/2/2009

Cory’s white blood cell count was low today so he will not be doing any chemo until his counts are back up. He is feeling good and will go back Monday for another blood test. Since Cory’s immune system is impaired due to the low counts he is going to avoid getting around people this weekend. Sandy is in Oklahoma seeing her Mother who is fighting cancer and I am hanging out with Cory. Cory and I plan on taking it easy and watching lots of football this weekend.

Jeff

 

Jeff Monzingo posted a new journal entry.

10/6/2009

Cory’s white blood cell count remains low. He will have another blood test on Thursday to see if he has any improvement. Cory is feeling OK but is a little tired and has some bone pain. All chemo has been stopped until his blood counts are better.  Keep Cory in your prayers.

 

Jeff Monzingo posted a new journal entry.

10/8/2009

Cory had blood work done this morning and his white blood cell count remains low. It has been a week since Cory has been able to have chemo due to the low white blood cell count. He will get a neulasta shot tomorrow which helps promote the production of white blood cells. Cory has experienced bone pain whenever he has received this shot in the past. Cory will have more blood work on Tuesday in College Station and then on Friday, October 16th at MD Anderson, Cory will have blood work, x-rays, PET scan, CT scan of his chest, abdomen, and pelvis, and then if his white blood cell count is better he will have chemo. It will be a long tiring day. These will be the first scans since Cory’s second surgery.  Our anxiety level will be high waiting for the results of the scans.

 

Cory has missed a few classes this week due to the low blood counts but he is doing well in school and remains very happy.

 

Keep Cory in your prayers.

 

Jeff Monzingo posted a new journal entry.

10/16/2009

The news is bad. The scans show that Cory’s cancer has spread into the liver. We will meet Monday with Doctors at MD Anderson and talk about starting radiation. I will update later this weekend I am not in much of a mood to talk about it right now.

Keep Cory in your prayers.

 

Jeff Monzingo posted a new journal entry.

10/17/2009

Cory had a PET scan and a CT scan performed Friday. These were the first scans since Cory had surgery in July.  We did not have an appointment scheduled with Cory’s Doctor Friday but Cory did have chemo scheduled late Friday afternoon. After the Doctor reviewed the scans he cancelled the chemo and had the three of us come see him. The Doctor was very troubled by the results of the PET scan. The PET scan showed a couple of areas of cancer on the diaphragm and cancer in several places in the liver. The cancer in the liver is not something that surgery could remedy because the cancer is in too many places and in areas that would make removal impossible. We discussed several treatment options for Cory and determined that chemo was not helping and would be stopped. Cory will meet with Doctors at MD Anderson on Monday about having radiation treatment. We do not know many details about the radiation treatment but believe the plan will be to do full abdominal radiation. In spite of the bad news Cory’s attitude remains good and he is willing to try anything that may work against this cancer.
Please keep Cory in your prayers.

 

Jeff Monzingo posted a new journal entry.

10/20/2009

We met with a Radiation Oncologist yesterday at MD Anderson and discussed a proposed radiation treatment plan.  Under this treatment plan Cory would receive full abdominal radiation. Cory would have 20 radiation treatments over 4 weeks at MD Anderson. We will be back at MD Anderson on Wednesday to discuss the radiation treatment and several other treatment options with Cory’s Oncologist.  No final decision has been made yet on what will be Cory’s next treatment.
Keep Cory in your prayers.

 

Jeff Monzingo posted a new journal entry.

10/22/2009

We met with Cory’s Oncologist yesterday. We discussed all of the current options available to Cory and it is the thinking of Cory’s Oncologist that the best option is for Cory to get into a clinical study on a new drug that is being tested at MD Anderson. We are currently working on getting appointments with the Doctor doing the study and should know more soon.

 

Keep Cory in your prayers.

 

Jeff Monzingo posted a new journal entry.

10/26/2009

We had many family members and friends in town this weekend for the LiveStrong Challenge. It was great fun and wonderful to see everyone. Many in the group did the 5k run or walk on Saturday. Clay, Kellie, Sandy, Aunt Lori, David Riegel, and Bob Dorsett, Jr. all did the bike ride on Sunday. Sandy said she beat Lance Armstrong on the bike ride. Of course Lance did the 100 mile course and Sandy did the 20 mile course but she said that she crossed the finish line before he did so that counts as a win.

 

Our group was on the news Saturday and I have attached a link to the Fox newscast. It has the video from the news. They got our last name wrong but that is ok that is not the story.

(As of loading this to corymonzingofoundation.org the video is no longer available on Fox News.)

 

Keep Cory in your prayers.

 

Jeff Monzingo posted a new journal entry.

11/3/2009

We met with Doctors at MD Anderson on Monday about a clinical study that they are having and would like Cory to participate.  The study is an IGFR/mTOR inhibitor using IMC-A12 (new Drug) and Temsirolimus. These drugs are designed to block proteins that are thought to cause cancer cells to grow. This study is undergoing a review board approval to continue and we will know the status of the continuation of this study and Cory’s participation next week. Cory also has an appointment next week at the Start Center for Cancer Care in San Antonio. The Start Center also has a clinical study that is an IGFR/mTOR inhibitor using two new drugs. We will know more about this study after our appointment. Both studies show promise but there are no guarantees that either study will help Cory. We will continue to research and try to come up with the best treatments possible for Cory.

Cory feels well and continues to go to school.  Please keep Cory in your prayers.

 

Jeff Monzingo posted a new journal entry.

11/13/2009

We received word today that the MD Anderson clinical study was granted approval to continue by the review board and Cory will be able to participate in the study. Cory will have scans next week at MD Anderson and will start the treatment on Monday, November 23rd. Cory also had an appointment today at the Start Center for Cancer Care in San Antonio. Cory could participate in a clinical study they are having but that study would not start until December 1st. Both studies are IGFR/mTor inhibitor drugs being studied so Cory is doing the MD Anderson study since he will be able to start it sooner. We are very hopeful that these drugs will have positive results on Cory’s cancer. Cory will be making weekly trips to Houston for treatment but should be able to continue school at Texas A&M while he is doing the study.

 

Please keep Cory in your prayers.

 

Jeff Monzingo posted a new journal entry.

11/20/2009

We are at MD Anderson today. Cory has a full day of tests and scans today. We will be back here Monday for more scans and Cory will have his first treatment on the new drugs that evening. Cory is feeling well and is ready to start the new treatment.

 

Cory’s cousin Jenny (my brother Mike’s daughter) is a senior at Texas A&M and decided that she wanted to go skydiving. Jenny took a several hour class so she could jump by herself and not in tandem with someone attached to her. Cory went with Jenny and she jumped this last Wednesday. Jenny did a free fall for about a minute and then pulled her parachute cord and made an excellent landing staying on her feet and not falling once she hit the ground. The instructors were impressed because they said on the first jump most people are not able to stay on their feet. Cory was very entertained by the jump but said it looked like a stupid thing to do. I thought that anyone willing to jump out of an airplane deserved to have their picture and story on here.

 

Jeff Monzingo posted a new journal entry.

11/24/2009

Cory completed his first infusion of the drugs on the clinical trial early this morning at 12:30 am. Cory had a full day of scans and tests on Friday and another full day of tests and scans on Monday. Once Cory had completed all of the testing we met with the Doctor in charge of the clinical trial on Monday evening and it was determined Cory was ready to start the trial. Cory is getting two different drugs by infusion and it will take several hours to perform each treatment that he receives. Cory will have treatment every Monday for the next eight weeks at MD Anderson in Houston. After the eight treatments are completed Cory will have new scans and based on the new scans in comparison to the scans taken at the beginning of this treatment a determination will be made to either keep Cory on this treatment or to terminate this treatment. The drugs Cory is getting have side effects so Cory will be monitored very closely but he will be able to go back to College Station after each treatment. Cory continues to have a positive attitude and is willing to do whatever treatment the Doctors think could cure his cancer. You never know what someone is capable of doing until they are faced with adversity and Cory continues to amaze us with his will to defeat this disease and live a normal life.

 

Please keep Cory in your prayers.

 

Jeff Monzingo posted a new journal entry.

11/26/2009

Happy Thanksgiving!!!
Cory is feeling well now after having one bad day not feeling well following his first treatment on the new drugs. He will have his next treatment on Monday at MD Anderson.
We are celebrating Thanksgiving at Cory’s apartment this year and then we are all going to the Texas A&M vs Texas football game tonight. Gig’em Aggies!!! Mike and Suzi (my brother and sister-in-law) are in from California along with Suzi’s parents, Tom and Marcie Smith. Brian (Mike and Suzi’s son) flew in from Montana where he is attending Rocky Mountain College. David and Karie Riegel are here and Clay and Kellie will be here later in the day. Mammy is here so we are having her make her world famous dressing for our Thanksgiving meal. Lots of football, food, fun, and fellowship.

 

God Bless you all and keep Cory in your prayers.

If you would like to see Jenny skydiving last week it is now on youtube.

 

Jeff Monzingo posted a new journal entry.

12/2/2009

Cory completed his second treatment at MD Anderson on the drug trial at 2:40 AM Tuesday morning. He had started the day at 10:00 AM on Monday. Needless to say Cory was exhausted and ready to go home. It will not normally take this long for treatment but Cory had issues with his portacath and it took several hours to get it to function properly. Cory is experiencing some side effects from the treatment but nothing serious. Cory’s next treatment is Monday at MD Anderson. We are all hopeful that the experimental drugs are helping Cory.  Cory continues to attend his classes at Texas A&M as much as possible but he is showing some stress from the treatments and trying to continue his education. Cory has registered for the Spring semester but we did convince him to take fewer classes to try and lessen some of the stress he is experiencing.

 

Please keep Cory in your prayers.

 

Jeff Monzingo posted a new journal entry.

12/5/2009

Cory is not feeling very well this weekend. He has developed mouth sores that are very painful. Cory is taking medication to heal the mouth sores and he is also using medication that numbs his mouth which does offer him some temporary relief. This is one of the common side effects from the treatment that he is receiving. We will go to Houston tomorrow because Cory’s appointments start early Monday morning at MD Anderson.
Keep Cory in your Prayers

 

Jeff Monzingo posted a new journal entry.

12/8/2009

Cory had a full day at MD Anderson yesterday. Cory’s white blood cell count was low so he was only able to receive one of the drugs that he is getting on the drug trial. He received a neupogen shot to help boost the white blood cell count so that hopefully he will be able to get both drugs on his treatment next Monday. Cory continues to have very painful mouth sores but is taking medication to heal them. The mouth sores have dampened Cory’s spirit some but he remains optimistic that this drug trial will help him in his battle against cancer.

 

Keep Cory in your prayers.

 

Jeff Monzingo posted a new journal entry.

12/11/2009

Cory’s mouth sores are much improved. He is able to eat and is talking again. He wouldn’t talk when the mouth sores were bad because he said it was very painful to talk. He started experiencing pain in his bones yesterday from his neupogen shot. This shot is to boost his white blood cell production and is always very painful for him. He does have pain medication to help. Cory’s next treatment is Monday at MD Anderson.

Keep Cory in your prayers.

 

Jeff Monzingo posted a new journal entry.

12/16/2009

Cory had his 4th treatment on the clinical drug trial Monday at MD Anderson. Cory’s white blood cell count was improved and he was able to get both of the trial drugs. Cory’s bone pain has increased and has caused him to feel miserable the last couple of days.  Cory’s mouth sores are healing and not causing him any more pain. Cory is home for the Christmas break so we are able to take care of him while he is not feeling well.

 

Keep Cory in your prayers.

 

Jeff Monzingo posted a new journal entry.

12/19/2009

Cory is feeling better. His pain and nausea have both subsided. Cory was feeling well enough to get out of the house for a short period yesterday and to go out to dinner last night. Cory will have his next treatment at MD Anderson on Monday.

 

Keep Cory in your prayers.

 

Jeff Monzingo posted a new journal entry.

12/21/2009

Cory was scheduled for his 5th treatment today on the drug trial at MD Anderson. Cory’s blood work came back showing that his white blood cell count is low and his liver enzymes were very high. Cory’s treatment was cancelled for today and he received a neupogen shot to help boost his white blood cell count. This shot causes him to have very bad bone pain. Cory will have an ultrasound of his liver on Tuesday to try and determine what the issues may be with the liver. Cory has additional appointments on Wednesday and if the liver does not have any major issues Cory will get a treatment on the drug trial Wednesday evening.

 

Keep Cory in your prayers.

 

Jeff Monzingo posted a new journal entry.

12/23/2009

Cory did not have a treatment today on the drug trial. His liver enzyme counts were improved but still too elevated for a treatment. The ultrasound of the liver on Tuesday did not show any obstructions or other issues that were not already known. Cory will go back to MD Anderson on Wednesday of next week and the Doctor is hopeful that all of Cory’s counts will be improved enough to have a treatment on the drug trial at that time. Cory is feeling well and he is hopeful that he will not get any bone pain from the neupogen shots he received this week.

 

Cory’s cousin Brian flew in from California today to spend Christmas with Cory. That is what Cory wanted for Christmas.

 

Keep Cory in your prayers.

 

Jeff Monzingo posted a new journal entry.

12/29/2009

We had a wonderful Christmas. Brian flew in from California and spent a few days with Cory. Clay and Kellie were also in town for Christmas and they are always able to lift Cory’s spirit. Cory received two neupogen shots last week and he started getting severe bone pain on Sunday. Cory has been feeling miserable since the bone pain started. We are hopeful that the pain will go away soon. Cory has appointments at MD Anderson on Wednesday and if all of his blood counts are good he will get his next treatment on the drug trial at that time.

 

Keep Cory in your prayers.

 

Jeff Monzingo posted a new journal entry.

12/31/2009

Cory was admitted into MD Anderson yesterday. Cory is experiencing serious liver issues. The Doctors will do several tests today and determine what can be done to help Cory. I will update later as I know more.

Please keep Cory in your prayers.

 

Jeff Monzingo posted a new journal entry.

12/31/2009

Cory had a CT scan of the abdomen today so the Doctors could try and figure out the issues Cory is having with his liver. Currently the Doctors are thinking that Cory’s issues are due to progression of the disease in the liver and not any obstruction that a stint could improve. We should know more tomorrow as several other Doctors will be reviewing the results of the CT scan and add their input. I have read the radiology report about the CT scan and the comparison to the prior CT scan and it appears that all of the tumors on the liver have increased in size. Cory will be staying in the hospital for the next several days due to all of the liver issues but the good news is that he is feeling better and his pain is under control.

 

We have had the pleasure the last two days of seeing and visiting with James Halstensgard and his father Luther at MD Anderson. James is a young man from Minnesota fighting DSRCT with a similar story to Cory’s. We met the Halstensgard family in New York when James and Cory both had surgery there earlier this year. It is a small group in the battle against DSRCT and it is always nice to be able to discuss your situation with someone that fully understands the obstacles and challenges faced.

 

Happy New Year to everyone and please keep Cory, James and all the other people fighting DSRCT in your prayers.